Family Resilience Programme

Roald Dahl's Marvellous Childrens Charity

Finding new ways to help families stay strong

Dad with two children facepainted with balloons

Resilience is the ability to withstand or bounce back quickly from shocks, difficulties and bad news.

Our Family Resilience Programme helps seriously ill children by improving the ability of their whole family to cope emotionally with their illness or disability.  We believe families need emotional resilience to deal with a range of feelings including anger, sadness and blame.

Our programme helps the children and young people themselves, parents or guardians, siblings and their extended family unit too.

We believe in inventiveness and practicality, so the programme develops new creative ways to help families to stay strong emotionally. 

Some projects will concentrate on a particular stage of the family's journey such as diagnosis, treatment or a life-changing event. Other projects will focus upon other aspects, such as finding new ways to reduce isolation and increase confidence.

We will champion the most promising new approaches to encourage them to be widely used by other people and organisations, in order to help as many children and families as possible.

How does the Family Resilience Programme work?

The programme will run for two years, from October 2013 to September 2015.

We are supporting thirteen projects as part of the Family Resilience Programme, working with the partner charities listed below. We estimate the first wave of the Family Resilience programme will directly help more than 5,500 children, young people and their families around the UK.

  1. Batten Disease Family Association, two residential family support weekends (Scotland and West of England).
  2. Child Brain Injury Trust, twelve webinars.
  3. Encephalitis Society, e-learning initiative.
  4. Genetic Disorders UK, four short animation films.
  5. HemiHelp, session for parents and workshops for young people.
  6. Lily Foundation, family day.
  7. Niemann-Pick Disease Group UK, emotional support for siblings and parents.
  8. Sebastian's Action Trust, group support for dads and part-time support worker.
  9. Shine, multi-media information for children and parents.
  10. Sickle Cell and Young Stroke Survivors, cognitive behavioural therapy family treatment programme.
  11. Sussex Association for Spina Bifida and Hydrocephalus, residential weekend and DVD production.
  12. Together for Short Lives, end-of-life support toolkit for young people.
  13. UK Thalassaemia Society, transistion support for young people and parents.

Read more about the projects.