Roald Dahl's Marvellous Childrens Charity

Information for parents

Our Marvellous Family Grants provide support to help UK families in financial hardship who are caring for a Child/Young Person with a serious illness.

If you are a parent or carer, please read the following information carefully before contacting an applicant officer.

Who can we help?

Marvellous Family grants are open to any family residing in the UK who meet the following criteria:

  • There is a Child/Young Person who has a serious illness that could be life-limiting, as described by the following:[1]
  • Group 1 - Life threatening conditions for which curative treatment may be feasible but can fail. (e.g. epilepsy, irreversible organ failures of heart, liver, kidneys.)
  • Group 2 - Conditions where premature death is inevitable. (e.g. cystic fibrosis.)
  • Group 3 - Progressive conditions without curative treatment options. (e.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)
  • Group 4 - Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (e.g. sickle cell disease, cerebral palsy, multiple disabilities such as brain or spinal cord insult.)
  • Group 5 - Syndromes without a name (SWAN) causing severe, chronic disability or illness

Please note that the charity's remit excludes all forms of cancer owing to levels of support for children and young people with cancer being far higher than those for other conditions. We are also unable to support applicants whose primary diagnosis is a developmental disability including Autism and ADHD.

  • The Child/Young Person is eligible to receive Medium or High Rate DLA or receives PIP
  • The Child/Young Person has yet to reach their 25th birthday
  • The family are living in financial hardship
  • The family has not received a grant for this Child/Young Person from the Marvellous Family Grants in the last 12 months
  • The grant is for the benefit of the Child/Young Person directly          

What are you able to fund?

Grant awards of up to a maximum of £1,000 are considered to enable families to access a variety of support including;

  • Physiotherapy, speech and language therapy, hydrotherapy and counselling, where the provision on the NHS is not sufficient
  • Play, art or music therapy sessions
  • Travel (including parking), whilst the Child/Young Person is in hospital (Note grants of up to a maximum of £300 are considered for travel and parking)
  • Specialist equipment, for example specialist seats and walkers, epilepsy monitors etc
  • Everyday items that will improve the Child's/Young Person's quality of life and keep them out of hospital longer, for example furniture, white goods and clothing (where this is required because of the person's condition)
  • Attendance at medical/support group conference
  • Ongoing social activities, lessons and memberships
  • iPad/laptops, where there is evidence that it will be of educational benefit to the Child/Young Person

How do I apply?

We are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a health or social care professional employed by a statutory organisation (NHS or local authority). This would normally be from a Nurse, Doctor, Physiotherapist, Occupational Therapist, Family Health Visitor/Worker or Social worker. They will know your family's history and would be happy to complete an application on your behalf. We call this person the Applicant Officer. 

 

The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process. If we had to do these checks internally we would not have as many funds available to help families.

 

How long does it take?

Applications are considered at a monthly grants allocations meeting. The application forms need to be submitted by a set date to be considered at each month's meeting. The application form needs to have been fully completed, including your signature. These dates can be found on the right hand side of We will notify your Applicant Officer with the outcome of the application within 4-8 weeks of receiving your application. 

 

Next Steps

Once you have decided who will make the application on your behalf, please pass our details on to them and ask them to register with us in order to make an application. Alternatively they can email grants@roalddahlcharity.org confirming their name, organisation name and contact details, so we can send them an application pack.

Please note our fund is limited and we will be unable to fund every grant requested. On some occasions successful grant applications may only be partially funded as we try and help as many families as possible.

Grants are generally awarded to eligible cases that demonstrate the greatest need, and where we feel our funding can make the biggest difference. 

 [1] Adapted from: ACT, ‘A Guide to the Development of Children’s Palliative Care Services,’ 2009.   

What are you able to fund?

Grants of up to £500 are available to enable families to access a variety of support including:

-          Respite care or family days out

-          Play, art or music therapy sessions

-          Peer group or counselling sessions

-          Equipment or expenses so children can join in activities with their friends

-          Access to social communications technology

-          Expenses to attend a family support event or conference

This list is not exhaustive.

 

Who can we help?

Marvellous Family Grants are open to any family in the UK in which:

·         There is a child with a serious long-term health condition

·         The child is eligible to receive to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP, or has an equivalent level of need

·         The child has yet to reach their 21st birthday

 

How do I apply?

Unfortunately we are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a healthcare professional, social services, health visitors, or grant coordinators within an organisation. The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process.  If we had to do these checks internally we would not have as many funds available to help families.

 

Who are application officers?

We would be able to accept applications through your social worker, family worker, health visitors, occupational therapist, and grant coordinator within an organisation.  Someone working within the healthcare profession who knows your family and your history and would be happy to complete an application on behalf of you.

 

Next steps?

Please pass our details to your healthcare representative and ask them to contact us in order for an application to be made.  Telephone number 01494 890465 or email wufoo link

Application and notification dates