Roald Dahl's Marvellous Childrens Charity

Information for parents

Our Marvellous Family Grants provide support to help UK families in financial hardship who are caring for a seriously ill child.

If you are a parent or carer, please read the following information carefully before contacting an applicant officer.

What are you able to fund?

Grants of up to £500 are available to enable families to access a variety of support including;

  • Play, art or music therapy sessions
  • Peer group or counselling sessions
  • Equipment or expenses so children can join in activities with their friends
  • Access to social communications technology
  • Expenses to attend a family support event or conference
  • Payment of high heating bills as a direct result of applicant's health condition
  • Car seats, walkers, bicycles, pushchairs, mobility chairs
  • Specialist furniture or household appliances required as a result of applicant's health condition
  • Beds, cots, bedding, or clothing
  • Travel expenses to and from hospital
  • Respite care

This list is not exhaustive.

Who can we help?

 

Marvellous Family Grants are open to any family in the UK in which;

  • There is a child with a serious long-term health condition
  • The child is eligible to receive to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP, or has an equivalent level of need
  • The child has yet to reach their 24th birthday.
  • There are serious financial constraints that mean the family cannot access such support
  • The family has not received a grant from Roald Dahl's Marvellous Children's Charity in the last 12 months

The Charity currently supports children and young people, aged 0-24, whose health condition is ‘life-limiting,’ as described by the definitions below:[1]

Group 1 - Life threatening conditions for which curative treatment may be feasible but can fail. (e.g. epilepsy, irreversible organ failures of heart, liver, kidney.)

Group 2 – Conditions where premature death is inevitable. (e.g. cystic fibrosis.)

Group 3 – Progressive conditions without curative treatment options. (e.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)

Group 4 – Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (e.g. sickle cell disease, cerebral palsy, multiple disabilities such as brain or spinal cord insult.)

Group 5 – Syndromes without a name (SWAN) causing severe, chronic disability or illness.

The Charity’s remit excludes all forms of malignant cancer owing to levels of support for children and young people with cancer being far higher than those for other conditions.


[1] Adapted from: ACT, ‘A Guide to the Development of Children’s Palliative Care Services,’ 2009 [Accessed 29 September 2016].

How do I apply?

We are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a healthcare professional, social services, health visitors, or grant coordinators within an organisation. The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process.  If we had to do these checks internally we would not have as many funds available to help families.

 

Who are applicant officers?

 

We would be able to accept application through your social worker, family worker, health visitors, occupational therapist, and grant coordinator within an organisation. Someone working within the healthcare profession who knows your family and your history and would be happy to complete an application on your behalf.

 

Next Steps

 

Please pass our details to your healthcare representative and ask them to contact us in order for an application to be made.  

 

Please note

Our fund is limited and we will be unable to fund every grant requested. 

All grant requests are assessed monthly on the third Friday of the month with funds granted to those cases demonstrating the greatest need, and where we feel our funding can make the biggest difference. 

 

Applications need to be submitted by 5pm on the third Thursday of the month. Applicant Officers will be advised on the outcome of their application no later than the second week of the month following the original request. 

What are you able to fund?

Grants of up to £500 are available to enable families to access a variety of support including:

-          Respite care or family days out

-          Play, art or music therapy sessions

-          Peer group or counselling sessions

-          Equipment or expenses so children can join in activities with their friends

-          Access to social communications technology

-          Expenses to attend a family support event or conference

This list is not exhaustive.

 

Who can we help?

Marvellous Family Grants are open to any family in the UK in which:

·         There is a child with a serious long-term health condition

·         The child is eligible to receive to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP, or has an equivalent level of need

·         The child has yet to reach their 21st birthday

 

How do I apply?

Unfortunately we are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a healthcare professional, social services, health visitors, or grant coordinators within an organisation. The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process.  If we had to do these checks internally we would not have as many funds available to help families.

 

Who are application officers?

We would be able to accept applications through your social worker, family worker, health visitors, occupational therapist, and grant coordinator within an organisation.  Someone working within the healthcare profession who knows your family and your history and would be happy to complete an application on behalf of you.

 

Next steps?

Please pass our details to your healthcare representative and ask them to contact us in order for an application to be made.  Telephone number 01494 890465 or email wufoo link