Roald Dahl's Marvellous Childrens Charity

Ilyas, A Miracle in his family and magic in himself

Ilyas has cerebral palsy. His condition doesn't stop him from getting the most out of life.

Ilyas

If you speak to Rena about her nine-year-old son Ilyas, she’ll tell you what a miracle he is and how his smile radiates everywhere.

Ilyas has cerebral palsy, but this doesn’t stop him from getting the most out of life and he has recently enjoyed lots of family outings. His mum says, "He really is quite a big personality and he fills up a room. He's just magic in himself."

But the personal journey Ilyas has had to make in his young life hasn’t been so easy. A month after he was born, Ilyas's heart stopped. His family were told he might not survive, but then he began to show some signs of improvement, as Rena remembers, "We just left it up to Ilyas to show us the way because we couldn't hope for anything. It was such a big scare." Because of his condition, Ilyas’ arms, legs and feet are very stiff because of his condition, which makes it hard for him to walk and his family are looking for therapy sessions to help with this.

Rena and Ilyas attended a family event at Birmingham Children's Hospital where she learnt about the support available from Roald Dahl’s Marvellous Children’s Charity who helped co-ordinate the event. Rena also met the Roald Dahl Nurses that support seriously ill children there and said, "I'm so happy I met the specialist children's nurses and Roald Dahl's Marvellous Children's Charity."

Ilyas's journey with his condition continues but with the support of Birmingham Children's Hospital and Roald Dahl's Marvellous Children's Charity, Rena hopes that Illyas can continue to let his personality shine.