Finding out your child has complex epilepsy is both a shock and a huge change for the whole family. We caught up with Angus’ mum, Nicola to find out how their Roald Dahl Specialist Nurse, Pauline has supported the whole family.
Roald Dahl’s stories are packed with brilliantly booky quotes. This World Book Day we've rounded up our very favourites...
Rare Disease Day takes place on the last day of February every year to raise awareness for rare diseases and the impact they can have on patients’ lives. Many of the children Roald Dahl Specialist Nurses support have a rare disease and we regularly hear about the immense challenges families who have a child with a rare disease face. Before having the support of a Roald Dahl Specialist Nurse, families have had to co-ordinate large numbers of appointments with multiple consultants or feel that they have to cope on their own with the stress of not knowing what the future holds for their child. Roald Dahl’s Marvellous Children’s Charity recognised the urgent need for specialist nursing support for these families and established the UK’s first Rare Disease Specialist Nurses as a result. There are now four Roald Dahl Rare Disease Specialist Nurses at Birmingham Children’s Hospital and one of the children they care for is 7-year old Logan. We caught up with his mum, Sophie to find out more.
As part of Roald Dahl’s Marvellous Children’s Charity #MarvellousMilestones series to celebrate the charity’s 30th anniversary, we caught up with our longest-serving Roald Dahl Specialist Nurse, Miranda Gardner who has been in post for 25 years!
#TeamMarvellous: Chris challenges himself to THIRTEEN virtual marathon events!
To celebrate Roald Dahl’s Marvellous Children’s Charity’s 30th anniversary, we are looking back at our marvellous milestones with a special series of videos and blogs. We start off with a powerful interview with the first-ever Roald Dahl Specialist Nurse, Anne Sweeney who was also the very first paediatric specialist epilepsy nurse.
Roald Dahl’s Marvellous Children’s Charity, which provides specialist nurses and support to seriously ill children, is celebrating its 30th anniversary by releasing a special timeline series to mark its marvellous milestones since it was set up in 1991 by Roald Dahl’s widow, Felicity Dahl.
What a magnificent question!
We had a cup of tea with Juli, our Senior Graphic Designer, and Laura, our Graphic Designer and Illustrator to find out all about what goes on in the crafty and creative world of our in-house Design team.
2021 marks a marvellous 30 years since Roald Dahl’s Marvellous Children’s Charity was set up by Roald Dahl’s widow, Felicity Dahl. The charity, which provides specialist nurses and support to seriously ill children, will kick off its special year by reflecting on its milestones from establishing the first ever Paediatric Epilepsy Specialist Nurse to creating the world’s first SWAN (Syndromes Without A Name) Specialist Nurse.
Roald Dahl said, "If you have good thoughts they will shine out of your face like sunbeams and you will always look lovely."
We believe in doing good things. Ten percent of The Roald Dahl Story Company Limited’s (company number 11099347) operating profit will go goes to charity. This means we give lots of money to good causes.