2021 marks a marvellous 30 years since Roald Dahl’s Marvellous Children’s Charity was set up by Roald Dahl’s widow, Felicity Dahl. The charity, which provides specialist nurses and support to seriously ill children, will kick off its special year by reflecting on its milestones from establishing the first ever Paediatric Epilepsy Specialist Nurse to creating the world’s first SWAN (Syndromes Without A Name) Specialist Nurse.
It is impossible to imagine how devastating it would be to find out that your child has a brain tumour and then suffers a stroke. That is what happened to Dáire and his family. Fortunately, Dáire has an excellent team in Belfast to help him through his rehabilitation including Roald Dahl Neurodisability Specialist Nurse, Jennifer. Dáire’s mum, Kerrie explains how Jennifer and the team made Dáire’s recovery as fun as it could be and involved the whole family in his care.
Samantha will be completing 500,000 steps in January to raise £500 for Roald Dahl’s Marvellous Children’s Charity.
An impressive twenty Roald Dahl Specialist Nurses based at NHS Trusts in England have been selected to take part in the highly regarded Florence Nightingale Foundation Leadership Programme, thanks to funding supported by Health Education England.
“I know Ahuoyiza is taken care of when she’s in hospital and that really settles me. She sees her Roald Dahl Specialist Nurse, Elizabeth and she knows she’s going to be ok.”
Joanna Lumley OBE is to preside over a very special auction in aid of Roald Dahl’s Marvellous Children’s Charity at Christie’s iconic auction house in London on the 9th December. Joanna is a committed and long serving Patron to the charity, which provides specialist nurses and support to seriously ill children.
To celebrate the book’s 50th anniversary, the Roald Dahl Museum is publishing a very special limited edition, in association with Penguin.
Henry (4) has the incredibly rare, inherited blood condition, Diamond-Blackfan Anaemia. Since diagnosis, Henry’s parents have been on an emotional rollercoaster having to take him for blood transfusions every three weeks and then a bone marrow transplant. Henry’s Roald Dahl Specialist Nurse, Clare, has been by the family’s side throughout. We caught up with Henry’s mum, Zoe to find out more about the impact of having a seriously ill child and why having the support of a Roald Dahl Specialist Nurse is so important:
Roald Dahl said, "If you have good thoughts they will shine out of your face like sunbeams and you will always look lovely."
We believe in doing good things. Ten percent of The Roald Dahl Story Company Limited’s (company number 11099347) operating profit will go goes to charity. This means we give lots of money to good causes.