If you work for an NHS Trust or are a parent of a child with juvenile arthritis, find out more about this innovative work.
Super Hero Kits project - get involved
A project created by Tracey Lole, Health Play Specialist, together with Clinical Lead Joanne Holder and Ann Barker, Paediatric Rheumatology Nurse Specialist, in the Children’s Community Team in Warwickshire in partnership with Roald Dahl’s Marvellous Children’s Charity and the Burdett Trust for Nursing.
The aim of this project is to help young children with Juvenile Arthritis to cope with their very painful injections. The Superhero Kit which includes a book, cape and a doll helps the children to understand their condition and treatment and helps reduce their fear and makes it a better experience for the child and family.
Children with Juvenile Arthritis are subject to very painful injections and, with the condition often hidden, the children can struggle to understand why they need to go through this pain. This project has created a unique Superhero Kit consisting of story book, a superhero cape and a male or female doll. The book helps the children to better understand how their treatment works and of its benefits. The doll represents the character in the book, and it can be used as a learning aid, a representation of the child to help them express their own feelings and concerns and it can be used as a comfort aid. The cape can only be worn during injections when the child becomes a superhero. The project team developed the kit and then tested it with a few children.
In order to disseminate the learning from the project, the project team would like to work with specialist teams who can use the Superhero Toolkits with their age appropriate patient cohort.Toolkits, with a light-touch evaluation pack, will be provided to interested Paediatric Rheumatology Teams. Also parents can get in touch to find out more.
For more information, please contact:- Sophie Dziwinski, Head of Programmes at Roald Dahl’s Marvellous Children’s Charity on firstname.lastname@example.org and 01494 890465.