19th May 2020
Charlie (12) went from being a happy, outdoor loving child and “a mini Bear Grylls” to one that was terrified to be on his own as he was having 15-16 full Tonic-clonic seizures a day. His mum, Kath talks to us about how Roald Dahl Specialist Epilepsy Nurse, Kirsten Johnson has helped the whole family by being there for them every step of the way.
18th May 2020
Taika Waititi is stepping aboard a certain giant peach, and he's invited some rather unexpected friends along for the adventure!
15th May 2020
Harvey, age seven, was inspired to raise money for Roald Dahl’s Marvellous Children’s Charity after seeing the charity’s supporter, David Walliams talking about Roald Dahl Nurses on This Morning with Philip Schofield and Holly Willoughby.
13th May 2020
Roald Dahl's Marvellous Children's Charity's Royal Patron, HRH, The Duchess of Cornwall has recorded a video message to say thank you to Roald Dahl Nurses and recognise them for the vital work they do.
13th May 2020
Roald Dahl Specialist Nurses and some of the seriously ill children they support have been illuminated on the iconic Piccadilly Lights screen to celebrate International Nurses Day, highlight the importance of specialist nurses and to launch a Nurses Appeal for Roald Dahl’s Marvellous Children’s Charity.
11th May 2020
Roald Dahl’s Marvellous Children’s Charity today launches a nurses appeal, the day before International Nurses Day (12th May), to ensure its network of 78 Roald Dahl Specialist Nurses can continue their vital work caring for seriously ill children while also supporting their fellow NHS workers on the frontline during the Coronavirus pandemic.
24th April 2020
From building 26 Duplo pirate ships to tying 26 bowline knots and building a rocket out of 26 household items, the children we support and their families have really stepped up to the 2.6 Challenge.
24th April 2020
Sadie (age 4) is a SWAN (Syndromes Without A Name) child which means she doesn’t have a diagnosis. Whilst to many people, Sadie looks like a healthy, happy four-year-old, she has a range of extremely complex health conditions. We caught up with her mum, Lucy to find out more about the impact of having a child without a diagnosis and an invisible, lifelong, incurable illness:
24th March 2020
Georgia (16) was diagnosed with epilepsy in November 2018 and has been supported by Roald Dahl Specialist Nurse, Louisa Griffith. Louisa has been a vital support for Georgia’s mum, Karen and has helped bring “peace of mind” to Georgia.
18th March 2020
During this public health emergency due to the COVID-19 pandemic, Roald Dahl Specialist Children’s Nurses and their specialist teams are under great pressure supporting children and young people with lifelong, incurable illnesses and their families. We are humbled by their dedication and commitment providing a vital lifeline to these families. Thank you from all at Roald Dahl’s Marvellous Children’s Charity.