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Charlie's Story

19th May 2020

Charlie (12) went from being a happy, outdoor loving child and “a mini Bear Grylls” to one that was terrified to be on his own as he was having 15-16 full Tonic-clonic seizures a day. His mum, Kath talks to us about how Roald Dahl Specialist Epilepsy Nurse, Kirsten Johnson has helped the whole family by being there for them every step of the way.

Introducing James and the Giant Peach, with Taika and Friends!

18th May 2020

Taika Waititi is stepping aboard a certain giant peach, and he's invited some rather unexpected friends along for the adventure!

Boy Inspired to Raise Money for Roald Dahl Nurses

15th May 2020

Harvey, age seven, was inspired to raise money for Roald Dahl’s Marvellous Children’s Charity after seeing the charity’s supporter, David Walliams talking about Roald Dahl Nurses on This Morning with Philip Schofield and Holly Willoughby.

HRH, The Duchess of Cornwall Thanks Roald Dahl Nurses on International Nurses Day

13th May 2020

Roald Dahl's Marvellous Children's Charity's Royal Patron, HRH, The Duchess of Cornwall has recorded a video message to say thank you to Roald Dahl Nurses and recognise them for the vital work they do.

Roald Dahl Nurses Illuminated on Piccadilly Lights

13th May 2020

Roald Dahl Specialist Nurses and some of the seriously ill children they support have been illuminated on the iconic Piccadilly Lights screen to celebrate International Nurses Day, highlight the importance of specialist nurses and to launch a Nurses Appeal for Roald Dahl’s Marvellous Children’s Charity.

Claudia Winkleman and Julie Walters Support Roald Dahl Nurses Appeal

11th May 2020

Roald Dahl’s Marvellous Children’s Charity today launches a nurses appeal, the day before International Nurses Day (12th May), to ensure its network of 78 Roald Dahl Specialist Nurses can continue their vital work caring for seriously ill children while also supporting their fellow NHS workers on the frontline during the Coronavirus pandemic.

Roald Dahl Families Rise to the 2.6 Challenge

24th April 2020

From building 26 Duplo pirate ships to tying 26 bowline knots and building a rocket out of 26 household items, the children we support and their families have really stepped up to the 2.6 Challenge.

"Everything is a fight because Sadie doesn't have a named condition."

24th April 2020

Sadie (age 4) is a SWAN (Syndromes Without A Name) child which means she doesn’t have a diagnosis. Whilst to many people, Sadie looks like a healthy, happy four-year-old, she has a range of extremely complex health conditions. We caught up with her mum, Lucy to find out more about the impact of having a child without a diagnosis and an invisible, lifelong, incurable illness:

“If we didn’t have our Roald Dahl Nurse, it would make things so much harder.”

24th March 2020

Georgia (16) was diagnosed with epilepsy in November 2018 and has been supported by Roald Dahl Specialist Nurse, Louisa Griffith. Louisa has been a vital support for Georgia’s mum, Karen and has helped bring “peace of mind” to Georgia.

Coronavirus Advice from Roald Dahl's Marvellous Children's Charity

18th March 2020

During this public health emergency due to the COVID-19 pandemic, Roald Dahl Specialist Children’s Nurses and their specialist teams are under great pressure supporting children and young people with lifelong, incurable illnesses and their families. We are humbled by their dedication and commitment providing a vital lifeline to these families. Thank you from all at Roald Dahl’s Marvellous Children’s Charity.