Marvellous Milestones

Posted by
Vicky Hewlett
Posted on
10:05am, 8th February

Roald Dahl’s Marvellous Children’s Charity, which provides specialist nurses and support to seriously ill children, is celebrating its 30th anniversary by releasing a special timeline series to mark its marvellous milestones since it was set up in 1991 by Roald Dahl’s widow, Felicity Dahl.

The charity has been innovating in specialist children’s nursing ever since it established the very first Roald Dahl Specialist Nurse, Anne Sweeney, who was also the UK’s first-ever paediatric epilepsy specialist nurse. Now there are 40 Roald Dahl Epilepsy Specialist Nurses across the UK! Since then, it has also created the world’s first SWAN (Syndromes Without A Name) Nurse post and the UK’s first Rare Disease Specialist Nurses.

It has also been trailing a blaze in transition of care by setting up Roald Dahl Specialist Transition Nurses who support children with complex, lifelong illnesses as they move to adult healthcare services. The charity has also established 14 Roald Dahl Haematology Specialist Nurses who support children and young people with Sickle Cell Disease and Thalassaemia. Other areas of expertise include Neuro-Muscular conditions; Gastroenterology and acquired brain injury.

Now in 2021, the charity is about to create its 80th Roald Dahl Specialist Nurse post and announce its focus for further specialist nurse posts for this year and beyond. Despite its many achievements, everyone at Roald Dahl’s Marvellous Children’s Charity is focused on the future and the urgent need to establish even more Roald Dahl Specialist Nurses.

Sophie Dziwinski, Roald Dahl’s Marvellous Children’s Charity’s Head of Programmes said: “Our marvellous network of Roald Dahl Specialist Nurses is currently able to support over 21,000 seriously ill children and their families but we know that there are at least 100,000 children who need our help. We fervently believe that every seriously ill child deserves a Roald Dahl Nurse and we will stop at nothing until we achieve that! It’s so wonderful to look back at our milestones but it’s also an opportunity to take stock and reflect on where we want to go next. Please do support us if you can – every penny helps us get closer to achieving our ambition to help every seriously ill child in the UK.”

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