Blog: 2020

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Roald Dahl Nurses Appeal supported by Julie Walters and Claudia Winkleman

11th May 2020

Roald Dahl’s Marvellous Children’s Charity launches a nurses appeal, the day before International Nurses Day (12th May), to ensure its network of Roald Dahl Specialist Nurses can continue their vital work caring for seriously ill children while also supporting their fellow NHS workers on the frontline during the Coronavirus pandemic.

Roald Dahl Families Rise to the 2.6 Challenge

24th April 2020

From building 26 Duplo pirate ships to tying 26 bowline knots and building a rocket out of 26 household items, the children we support and their families have really stepped up to the 2.6 Challenge.

"Everything is a fight because Sadie doesn't have a named condition."

24th April 2020

Sadie (age 4) is a SWAN (Syndromes Without A Name) child which means she doesn’t have a diagnosis. Whilst to many people, Sadie looks like a healthy, happy four-year-old, she has a range of extremely complex health conditions. We caught up with her mum, Lucy to find out more about the impact of having a child without a diagnosis and an invisible, lifelong, incurable illness:

“If we didn’t have our Roald Dahl Nurse, it would make things so much harder.”

24th March 2020

Georgia (16) was diagnosed with epilepsy in November 2018 and has been supported by Roald Dahl Specialist Nurse, Louisa Griffith. Louisa has been a vital support for Georgia’s mum, Karen and has helped bring “peace of mind” to Georgia.

Coronavirus Advice from Roald Dahl's Marvellous Children's Charity

18th March 2020

During this public health emergency due to the COVID-19 pandemic, Roald Dahl Specialist Children’s Nurses and their specialist teams are under great pressure supporting children and young people with lifelong, incurable illnesses and their families. We are humbled by their dedication and commitment providing a vital lifeline to these families. Thank you from all at Roald Dahl’s Marvellous Children’s Charity.

Easter at the Roald Dahl Museum

3rd March 2020

Come and visit the Roald Dahl Museum over the Easter holidays for lots of fun with Fantabulous Food!

What's happening this World Book Day?

27th February 2020

We don’t want everyone to get too excited but we have rather a lot going on.

Rare Disease Day 2020: Spotlight on Roald Dahl Rare Disease Nurses

25th February 2020

This week, we are marking Rare Disease Day with a special video series featuring our Rare Disease Roald Dahl Nurses, who are based at the UK’s first centre for children with rare diseases located at Birmingham Women’s and Children’s Hospital.

“It would be devastating if we didn’t have our Roald Dahl Nurse, Sarah”

25th February 2020

Having a rare disease can be really challenging and isolating. To find out more, we caught up with a family who is supported by one of our four Roald Dahl Rare Disease Nurses who are based at the UK’s first centre for children with rare diseases at Birmingham Women’s and Children’s Hospital.

Just in time for World Book Day...

20th February 2020

A brand new edition of Charlie and the Chocolate Factory has arrived!