Roald Dahl Families Rise to the 2.6 Challenge

Posted by
Vicky Hewlett
Posted on
11:20am, 24th April
Categories
Charity

From building 26 Duplo pirate ships to tying 26 bowline knots and building a rocket out of 26 household items, the children we support and their families have really stepped up to the 2.6 Challenge.

A nationwide campaign, the 2.6 Challenge kicks off on Sunday, April 26th, the date of the London Marathon which has had to be postponed because of the Coronavirus. Funds raised from the challenge will help charities who would have received fundraising income from the marathon. Everyone at Roald Dahl’s Marvellous Children’s Charity has been blown away by the number of children and families we support who are taking part.

Logan (7) is making 26 Duplo pirate ships in 26 mins for Roald Dahl's Marvellous Children's Charity because “we want to help raise money for nurses like mine.” Logan: “I have a few (ok, maybe alot) of medical conditions which I've lived with since I was born. They think I have VACTERL association and I also have a very rare genetic condition, so rare in fact I'm still undiagnosed! I have a few heart conditions (even after open heart surgery), scoliosis, hearing loss, hypermobility and a musculoskeletal disorder to name a few but the list is a bit lengthy to carry on. Because I have a 'rare disease' I am lucky enough to have been given my very own Roald Dahl Nurse called Sarah. She is amazing, she's one of a kind and I don't think she's realises just how important she is to me, my mum and my family.

Please sponsor Logan in his 2.6 Challenge: https://bit.ly/LogansTwoPointSixChallenge

photo of Will

Will (14): “I will attempt to tie 26 Bowline Knots in 2.6 mins for Roald Dahl's Marvellous Children's Charity because my Roald Dahl Nurse is truly amazingly marvellous! Last year, aged just 12, my world came crashing down around me. I suffered a haemorrhagic stroke, was diagnosed with multiple Cavernous Malformations in my brain and the damage caused left me with unstable epilepsy. Prior to this I was a competent dinghy sailor, competing both nationally and internationally, but everything stopped. Medics advised against me sailing and life became very dark... that was until Kat came along.” 

“Kat is my specialist Roald Dahl Nurse. She has been amazing. She showed me a way out of the darkness, believed in my ability rather than my disability and has been so much more than just a nurse. She is everything from my caregiver, school advisor, emotional lynchpin, bonkers chatterbox and fierce advocate (although her jokes are pretty poor)! When the door looks shut she either breaks it down or finds a new one. She has been the light for not only me but my whole family and I owe the charity so much.”

Please sponsor Will in his 2.6 Challenge: https://bit.ly/WillsTwoPointSixChallenge

photo of Ollie

Ollie (6): “I am building a rocket for Roald Dahl's Marvellous Children's Charity because this is a marvellous charity!”

Ollie’s mum, Sian: “In 2017 we received the news that we were dreading, that Ollie had epilepsy. He was diagnosed with focal occipital epilepsy, with four different types of seizures. We are so incredibly proud of Ollie's strength, through every seizure, and every day that he has lost through this awful illness. We want to say thank you to a marvellous charity who provide Ollie with a specialist nurse to support him and us. To raise money Ollie will be making a rocket in 26 minutes, out of 26 items and will also be reading a book about the planets for 2.6 hours for the #TwoPointSixChallenge to raise money for the Roald Dahl’s Marvellous Children’s Charity.”

Please sponsor Ollie at:  https://bit.ly/OlliesTwoPointSixChallenge

photo of Carter

Carter (10): “I'm making 26 Lego models for my amazing Roald Dahl Nurse and for Roald Dahl's Marvellous Children's Charity because I want to say Thank You!! My name is Carter and I am 10 years old. I suffer from a collagen connective tissue disorder, which means I dislocate my joints on a daily basis, it also affects my ability to walk distances, so I have to use a wheelchair at times, my tummy and my skin. I am known as a Zebra because I am so rare.  I am lucky enough to have an amazing Roald Dahl Nurse in my life, called Tina. Tina is a Specialist Roald Dahl Nurse based at Birmingham Children's Hospital, she helps my mom and dad manage all my appointments (and there's a lot), visits my school so that they understand my condition and she sits and plays with me, when I get fed up of all the doctor's. Lego is my favourite thing in the whole world, and I may dislocate a few of my fingers along the way, but I want to be able to say Thank You to Tina and all the other AMAZING, Roald Dahl Nurses, who are continuing to care for seriously ill children during this difficult time.

Please sponsor Carter at: https://bit.ly/CartersTwoPointSixChallenge

photo of Georgia

Georgia (16) will be challenging herself to do 26 mins of Wii dancing to raise money for Roald Dahl’s Marvellous Children’s Charity. Georgia was diagnosed with epilepsy in November 2018 and has been supported by Roald Dahl Specialist Nurse, Louisa Griffith. Louisa has been a vital support for Georgia’s mum, Karen and has helped bring “peace of mind” to Georgia.

Please sponsor Georgia: https://bit.ly/GeorgiasTwoPointSixChallenge

photo of Dominic and his Roald Dahl Nurse, Anna

Dominic (13) Dominic’s mum, Renata: “Dominic was born with a condition that means that he cannot walk, he is fed through a tube and needs daily medication to keep him well. Despite being under a world-renowned children's hospital, they still don't know the cause, so for 13 years he has remained undiagnosed. He has been critically ill many times and finds any physical activity exhausting.

There are two charities that have had a significant impact on our lives, SWAN UK and Roald Dahl's Marvellous Children's Charity. Both charities support children with undiagnosed conditions. Before they came along, there was nothing for families like ours. Both charities are small and are really struggling during the pandemic, so Dominic and I wanted to do something to help them on Undiagnosed Children's Day. Dominic has agreed to take on a huge challenge in the hope that people will support him and donate whatever they can. He will be attempting to complete 26 laps of our hallway in his walker, and we will be streaming it live on Facebook. He can normally only manage a few minutes walking using a frame, so this will be like his own mini-marathon. He is very nervous about it and it will be gutting if he doesn't get the support he's hoping for, so please, if you can come and cheer him along on Facebook and give him a donation to keep him going.

Please sponsor Dominic: https://bit.ly/DominicsTwoPointSixChallenge

photo of Marvin the mascot with Roald Dahl Nurses

And last but not least, our plucky mascot, Marvin is also taking part in the 2.6 Challenge. He is challenging himself to a croc-tastic circuit training challenge. We have been running polls on our Twitter page to ask our audiences what Marvin should do. At time of writing, so far he is doing 26 burpees, star jumps, tail raises and 2.6 minutes of ‘The Floss’ and breakdancing. Surely that deserves some sponsorship?!

Please sponsor Marvin: https://bit.ly/MarvinTwoPointSixChallenge

Thank you all for your marvellous support – all of us at Roald Dahl’s Marvellous Children’s Charity and our family of 78 Roald Dahl Specialist Nurses really appreciate it.