Little George app and book supports children and families affected by Sickle Cell.
Roald Dahl's Marvellous Children's Charity in conjunction with The Burdett Trust for Nursing and multi-media charity Twin Vision has funded a project to launch Little George and the Dragon, a brightly illustrated, free picture book and app that supports understanding of Sickle Cell.
Sickle Cell is an inherited condition that causes a person's red blood cells to change shape. The cells can obstruct and narrow blood vessels which leads to painful crises, resulting in lots of hospital admissions and long-term pain management.
The Little George and the Dragon app and book have been created to explain Sickle Cell to children aged five to ten, in a gentle, humorous way. Families can pay a visit to Waggle Avenue, where Little George learns how to manage his pain during a crisis, with help from his Mum and his friend Dragon along the way. The app and book were inspired by children at Alder Hey Children's Hospital including 13-year-old George (see photo) who has had Sickle Cell since birth.
The resources are part of a comprehensive educational package for children and their families. Education is key to managing Sickle Cell and can offer critical support, providing understanding and enable children to feel empowered, rather than overwhelmed by their condition.
Little George and the Dragon also reinforces continued professional development for healthcare professionals that are involved with the project. Haematology Clinical Nurse Specialist Louise Smith and Staff Nurse Linda Barton have been able to further meet the needs of those in their care at Alder Hey Children's Hospital as a result.