On 8 December, Roald Dahl's Marvellous Children's Charity celebrated its Roald Dahl specialist children's nurses and other healthcare professionals, as well as the families we support, by holding a marvellous conference in Birmingham.
On Friday 8 December, Roald Dahl specialist children's nurses and healthcare professionals from across the country attended the Roald Dahl nurses conference in Birmingham to celebrate specialist children's nurses.
Roald Dahl's Marvellous Children's Charity CEO Jane Miles opened the day by talking about the work of our charity in the last year and introduced our first speaker Professor Dame Elizabeth Anionwu DBE CBE FRCN FQNI PhD who talked about her experience of becoming the UK's first Sickle Cell and Thalassaemia specialist nurse. As a charity which supports children affected by these conditions, delegates were inspired after hearing Dame Elizabeth's session.
We then heard from Kay Parkinson from the Cambridge Rare Disease Network who shared her parent's perspective of rare diseases. Did you know our host city of Birmingham has three Roald Dahl specialist nurses who support children and families affected by rare diseases?
Several Roald Dahl nurses then presented their findings after taking part in a bespoke programme with the Royal College of Nursing, which was based on demonstrating the value of specialist children's nursing.
We were delighted to showcase the premiere of our new film to raise awareness of how Sickle Cell affects families and how Roald Dahl nurses support them. Then we launched something rather marvellous: Marvin's Marvellous medals and awards. These special awards are for families our nurses help who have gone above and beyond to help support other families to raise awareness about serious conditions, even when facing difficult circumstances themselves.
The conference closed with a talk from the charity's Chair of Trustees and Roald Dahl's biographer, Donald Sturrok, who spoke about Roald's philanthropic work during his lifetime. Then, along with Liccy Dahl, President of Roald Dahl's Marvellous Children's Charity, the delegates were treated to a special performance of Roald Dahl's The Three Little Pigs.
We wish to thank everyone involved in making our 2017 conference such a marvellous success.