This Mother's Day we celebrate Becky, the marvellous mum of seven year old Sam who has epilepsy.
Mother's Day is for celebrating Mum and what better way to mark the 6th March than by sharing the story of Becky and her family. Becky and her husband James are parents to three boys, Toby, Lucas and Sam. Sam was diagnosed with epilepsy two years ago when he was five, but there were signs that all was not well when he was only three. Early on, Sam was treated for nasal congestion, but when the diagnosis was eventually confirmed, it was a scary time for his family. Now Sam experiences as many as 20 seizures a day and as many as 60 a week. His Mum, Becky, remembers the first time Sam had a bad seizure:
”I was very scared, because he lost the feeling down one side of his body and had some kind of palsy in his face. He was unable to talk properly and his facial expressions had changed. We didn’t know what was wrong and, as a parent, your natural instinct is to want to protect and make sure your child is safe and secure.”
Sam is cared for by his marvellous Roald Dahl Nurse Lilly, who provides support to both Sam and Becky. Sam’s Mum says that without their Roald Dahl Nurse, Lilly, the family wouldn’t manage as well as they do. Lilly is someone she can have a bit of a laugh with, as well as having her there to give emotional support and to use her specialist nursing knowledge of managing complex cases of epilepsy like Sam’s.
We know that for mums like Becky, it can be very hard work caring for a seriously ill child, as well as looking after the rest of the family. We are pleased that we can provide Roald Dahl specialist nurses to support Sam and his family, and many other families across the UK.
If you'd like to make a donation this Mother's Day, your generosity can help us to provide more nurses like Lilly to support more children and their famlies, just like Sam and Becky.