Roald Dahl Neuro-muscular clinical nurse specialist Jo provides ongoing support for Aidan and his family.
Aidan has an undiagnosed neuro-muscular condition. He has to have regular tests and frequent visits to hospital.
Roald Dahl Neuro-muscular clinical nurse specialist Jo provides ongoing support for Aidan and his family. They are extremely grateful for her support and say, "She makes us feel comfortable, offers information and for any questions she's the first point of contact."
Roald Dahl nurse Jo provides highly specialised clinical advice, as well as logistics support, such as making sure appointments across different departments are coordinated on the same day, to help ensure Aidan doesn't miss too much school.
Aidan's mum Nicola says, "Jo really helps me because there may be five different things that need to be done. He doesn't just go into the child development centre, there are bloods to be taken, he has an MRI scan, cardiology and more, and that's just logistics I'm talking about. For clinical advice, Jo's amazing."
Aidan also really values Roald Dahl nurse Jo's help and support. He says, "She helps me out a lot. She supports me when I'm doing something that I'm a bit nervous about, like when I was doing my MRI scan, she said that it would be okay."
With Roald Dahl nurse Jo's help, he no longer feels frightened attending appointments. Her understanding of Aidan and other children's and families' needs, ensures they feel positively supported.