Roald Dahl's Marvellous Children's Charity helps seriously ill children with rare and undiagnosed conditions in the UK by providing specialist children's nurses and grants to families.
Bella was diagnosed with primary autoimmune neutropenia last year. This means her risk of catching infections that can become life-threatening is very high.
Bella is cared for at the hospital by Jodi, her Roald Dahl nurse. Jodi has been helping the family since Bella’s diagnosis, teaching them about neutropenia, which precautions to take at home to keep her healthy and when to bring Bella to the hospital and
“Once Bella was referred to the Paediatric Day Unit we found the support, information and advice given to us was wonderful. Many a time I have been able to phone or email Jodi and she has always been so supportive and helped me immediately.” Bella’s mum.
There are tens of thousands of seriously ill children in the UK like Bella living with a rare or undiagnosed medical condition. Coping not just with the illness but also the unknown, puts immense strain on children and their families.
Serious illness and treatment in hospital can be challenging and frightening for a child, while at home and school, daily life can be extremely difficult.
Roald Dahl’s Marvellous Children’s Charity provides direct support for children and their families through nurses and grants to families.
Our Roald Dahl Children’s Nurses, like Jodi, understand what seriously ill children and their families go though. They provide vital information, reassurance and support, in hospital and at home. There are currently 51 Roald Dahl Nurses caring for over 20,000 children across the UK.
Our Marvellous Family Grants, provide support such as respite care, counselling and play therapy, helping families facing financial hardship whilst caring for a seriously ill child.
We aim to be a friend, to listen to families and to learn what will help and encourage them most.
You can be a marvellous friend too. There are so many seriously ill children who still need one.
How can you be a marvellous friend?
There are three easy ways to support Roald Dahl's Marvellous Children's Charity:
Text 'Nurs00 £5' to 70070 to donate £5
Shop using Give as you Live to raise money at no extra cost to you.
Join our Christmas JustGiving Campaign and donate a nursing hour.